WHIM Syndrome Patient Education Programs

Learn about living with and managing WHIM syndrome.

FIND AN EVENT

Next Event: ...

WHAT TO EXPECT AT AN EVENT

Information about WHIM syndrome
from an X4 Nurse Educator*

Stories from people
living with WHIM syndrome

UPCOMING EVENTS

*X4 Nurse Educators are employees of X4 Pharmaceuticals and do not work under the direction of a healthcare professional; they do
not offer medical or treatment-related advice. For treatment and medical questions, you should contact your healthcare provider.

VIRTUAL EVENTS

IN PERSON EVENTS

BACK TO EVENTS

To register you for the program, we will be collecting personal information, such as your name and contact information, and any health information that you provide. We will use your information only in connection with your program registration. We do not and will not sell your personal information, and we will not share it with any third parties for any crosscontext behavioral advertising. We will retain your personal information only as long as legally required. To learn more about our privacy practices and how to exercise your privacy rights, please review our Privacy Notice and our Health Information Privacy Policy by visiting https://www.x4pharma.com/consumer-health-data-privacy-policy/.

^*Indicates a required field

First Name^*

Last Name^*

Email Address^*

Phone Number^*

Zip^*

Are you or your loved one currently living with WHIM syndrome?

Yes No Unsure

Which of the following best describes you?

Patient Family Member Caregiver Other

We will provide a reminder email a few days before the program. Would you like to receive a call and/or text reminder as well?

Call

If you are unavailable, do we have permission to leave a voicemail?

Yes No

Text (If selected, you agree to any data rates that may apply.)

How did you hear about this event?

Flyer Email Social Media www.WHIMsyndrome.com Family/Friend Health Care Professional Advocacy/Support Group X4Connect/X4 Nurse Educator Other

How many guests will be attending the event with you?^*

For those registering for an in-person program:
Do you or any of your guests have dietary restrictions? (Select all that apply.)

Vegan Vegetarian Gluten-free Kosher Pescatarian Nut allergy Other None

To help guide future WHIM Syndrome Patient Education Program development, may we contact you after the program to gather your feedback on the program?

Yes No

If your doctor suspects or has diagnosed WHIM syndrome for you or a family member, X4 Pharmaceuticals can arrange access to a dedicated Nurse Educator who specializes in WHIM syndrome and can provide you with resources and support. Would you like for an X4 Nurse Educator to contact you?

Yes No

Finally, would you like to receive information from X4 Pharmaceuticals about future programs and educational opportunities, as well as its products and services? You can learn about X4 Pharmaceutical’s privacy practices, how your health information is protected, and your privacy rights by visiting its privacy policy at https://www.x4pharma.com/consumer-health-data-privacy-policy/. X4 Pharmaceuticals will not sell your personal information. You may opt out at any time by clicking the “unsubscribe” link in our email communications or by following the opt-out instructions in our Privacy Policy.^*

Yes No

Submit

*By selecting yes, you are at least 18 years old and with your consent, X4 Pharmaceuticals may contact you for marketing purposes, such as to provide you with information, offers and promotions regarding X4 Pharmaceuticals areas, products, and programs, to conduct market research or surveys, and to use your Information to develop future products, services and programs.

You understand that you may withdraw your authorization provided above by emailing or following the unsubscribe instructions on the communication. Unless you withdraw this authorization, it will remain effective for two years. Copies of this authorization may be obtained by emailing [email protected].

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WHIM Syndrome Patient Education Programs

WHAT TO EXPECT AT AN EVENT

Information about WHIM syndrome from an X4 Nurse Educator*

Stories from people living with WHIM syndrome

UPCOMING EVENTS

Thank you!

There was a problem

Information about WHIM syndrome
from an X4 Nurse Educator*

Stories from people
living with WHIM syndrome